About

The KidGen collaborative formed in 2017 to improve patient care outcomes for genetic kidney disease (GKD). The collaborative, under the leadership of Prof. Andrew Mallett, is built up from one hundred clinicians, researchers and scientists. The collaborative has helped approximately 1000 patients nationally throughout Australia take part in cutting edge research studies with about a quarter receiving a diagnosis from these studies. Our next milestone is a 70% diagnosis rate over the next five years, which we are well resourced to achieve (NHMRC-GHFM Grant $3million). Undiagnosed patients in the system that gave us consent to keep working, will have the latest computational approaches (at the Center for Population Genomics) applied to their past results leaving no patient behind. The network has historically been imbedded in the Murdoch Children’s Research Institute, Melbourne and the University of Queensland with strong ties to Australian Genomics being an early flagship. Today we also have a presence in James Cook University in Far North Queensland. We have eighteen clinics, with five genetic counsellors and two program managers distributed nationally. Throughout KidGen’s history, a strong emphasis has always been on educating the workforce, with our first lead A/Prof. Cathy Quinlan recently stepping down after building a program of international standing. Watch this space as we announce education developments with our new co-leads, Dr Hugh McCarthy and Dr Chirag Patel.