For Patients
Have your say…..
The University of Sydney and KidGen invite you to participate in a focus group study which seeks to understand patient and family experiences of genetic testing and genetic counselling.
The aim of this study is to inform strategies to improve the care and support for families around genetic testing and beyond.
We are inviting patients with genetic kidney disease and their families to take part in a 90min focus group discussion.
To find out more please click the link below:
The University of Sydney and KidGen invite you to participate in an interview study which seeks to understand the experiences of women with Alport syndrome along their journey.
We aim to identify the needs and priorities of women with Alport syndrome and specifically address their unmet information needs.
The interview will take about 45 minutes.
If you are interested in participating, or want more information please click the link below:
